The.....impossible happened yesterday 1 year plus now where do we go from here?
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Background: Hi I'm a trans woman with likely CCI that was bedbound with ME for 5 years. I was a patient of the Bateman Horne Center for two and a half years. After years of being so ill, I slowly paced enough to the point that I was able to move via a couple hour flight. I moved from a very dry location to a very wet location which saw a drastic unprecedented improvement of my condition in which I went from being able to walk 50 feet at a time to being able to walk miles in the span of a week. It is my belief that possible mold and the change in elevation somehow interacted with my CCI in such a way to lessen my symptoms drastically. It's been a year of mostly consistent updates. I wanted to post and see what people have been thinking and how I should go from here? Would you still like weekly updates or monthly ones? I've also been working on some articles about MECFS that are slowly coming along that are taking more time and energy than I anticipated that I want to share here as well. I've working on a long article that's more a series of articles called "So You or Someone You Love has MECFS: What You Can Do." It contains all the basic knowledge I have from medical professionals and strategies I used to start to get better and deal with the reality that we all face. As I hope to complete that article by the end of the month, what would be the most useful or helpful thing for me to post? Updates? More thoughts on certain subjects? Other things? All of the above? I want to hear from you!
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