MCAS & ME
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Had a quick question, and I thought you guys would understand. I have an appointment for a rheumatologist to investigate the possibility of lupus, because it’s been suspected for a long time due to a face rash I have and like 40 other symptoms. Obviously I have ME (and dysautonomia), so many people have also mentioned MCAS, and I know typically you see an allergist for help with that. Unfortunately, I’m moderate-severe right now and incapable of seeing more than the rheumatologist for a while. I was just wondering if anyone who has MCAS and ME would be willing to talk with me about symptom management and what this condition actually looks like when you aren’t having allergic-like reactions. Would anyone be willing to chat or comment below their experience? TLDR: seeing an allergist for MCAS diagnosis is not possible for me now, and seeking someone’s perspective about MCAS experiences without allergic-like reactions Edit: I also wanted to add that I’ve done the MCAS elimination diet, and nothing changed. I’m currently doing low fat, low fiber, and anti inflammatory diets for my autoimmune gastrointestinal dysmotility. I no longer have fatigue after eating as we found out I have reactive hypoglycemia and altered my diet accordingly. I personally feel like the likelihood of me having MCAS is low due to my symptoms, but don’t want to overlook something if there’s something I can do about it.
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