Back to Leads
Reddit

New discoveries for hEDS. We might have out own genetic test someday!

Post Content

So this was in my mail inbox today, and it seems pretty exciting for hEDS patients. https://ehlersdanlosnews.com/news/multisystem-genetic-changes-drive-hypermobile-eds-study/?mc\_euid=2b8acf23b0&utm\_source=EDS&utm\_campaign=6e06c6fde6-Email\_ENL\_US\_EDS&utm\_medium=email&utm\_term=0\_14b3a6db71-6e06c6fde6-74375933 Mine was pretty "silent" until I was given Levaquin, which did mitochondrial DNA damage, wrecked my whole body, and it flipped to "very loud".

Details

Posted
Feb 12, 2026 at 10:05 PM UTC
LeadScore: 5

AI Analysis

Condition
hypermobile Ehlers–Danlos syndrome (hEDS), mitochondrial dysfunction
Geography
us likely