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How to use my limited improvements in a healthy way?

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So I’ve definitely improved since I fell ill 9 months ago. It’s been multiple months since I’ve crashed badly enough to be unable to eat or speak. And at my baseline, most days I cook for myself. I can watch an hour of television and be on my phone all day. I don’t have to worry about if I have to walk across the house to get water. Don’t need my cane in the house. However with these gains, I have abandoned many things I was doing when I was sicker. Seeing friends more often, writing letters, reading comics and magazines, and thinking of creative ideas or doing small crafts and activities. I used to do these things because I could not tolerate media. And because I wasn’t able to fetch my own food so I had more time to kill. I feel like if I had stayed disciplined like I was, I might be a lot better by now. I might be visiting friends or slowly writing down of my stories or at least I might’ve cleaned my room. But instead I spend my energy on watching videos and I get a headache and I just do nothing but screen time. But I’m CLEARLY better like I don’t crash after traveling to appointments, I cook without even worrying about it, I just do it (this is HUGE,) and I abuse my poor brian with 15 hours of screen time and then still bounce back from it. And my resting hr and hrv are better, I don’t get palpitations. I feel like I could be doing more and being healthier, using this progress to build a happier life but I guess now I feel spiritually tired, even if I’m not crashing quite so hard. Is there a way to direct progress in a healthier way? It feels weird that I’ve made all these improvements but yet my life, looking in from the outside, is functionally no different. No work, no leaving my house, no social gatherings, no hobbies. Maybe even worse because I’m not making art or seeing friends as much or EVER going outside. How do you use your improvements to better your life instead of just spending it on more brain rotting?

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r/cfs
Posted
Feb 12, 2026 at 11:49 AM UTC
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