ADTKD-ren

Hi all! Not sure if this is allowed, if not apologies and feel free to delete! 2 years ago I was diagnosed with ADTKD- ren, a very rare kidney disease. At the time only 11 families world wide were found to have this disease, but the number is actively going up! I created a subreddit just for this and it is r/ADTKDren Feel free to join if you or a loved one suffers from this disease 💕